The original 100 EIQ items were developed from a qualitative study [17] and from a systematic literature review. E\\y\FzFfP\.s=3sS#&U) H*2T0T04&Ff endstream endobj 145 0 obj <>/Subtype/Form/Type/XObject>>stream The results indicate that the EIQ has very good test-retest reliability. f 0.749023 g E\\y\FzFfFP\.s=3s#(&Q/ endstream endobj 247 0 obj <>/Subtype/Form/Type/XObject>>stream The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women's lives M. Moradi, M. Parker, +2 authors D. Ellwood Published 14 May 2019 Psychology, Medicine BMC Women's Health BackgroundEndometriosis is a chronic disease impacting on many aspects of a woman's life. https://doi.org/10.1016/s0029-7844(01)01433-8. author f H*2T0T04&Ff PMC Article Cronbach's alpha for each recall period of the EIQ was 0.97 across the 63 items, indicating very good reliability. Accessibility endstream endobj 206 0 obj <>/Subtype/Form/Type/XObject>>stream 0 0 9.949 9.425 re https://doi.org/10.1016/j.ejogrb.2013.04.001. f H237402VH2P0P4&F Endometriosis has a significant social and psychological impact on the lives of women across several domains and there is an urgent need to develop and evaluate interventions for supporting women and partners living with this chronic and often debilitating condition. The development process is illustrated in Figure 1. HRQoL was impaired in women with endometriosis, and medical or surgical treatment to alleviate pain could partially restore this impairment. endstream endobj 190 0 obj <>/Subtype/Form/Type/XObject>>stream Because of the chronic and recurring nature, many of the impacts of endometriosis could be missed using existing questionnaires which focus on recent events. f Development of an endometriosis quality-of-life instrument: The Endometriosis Health Profile-30. H*2T0T04&Ff Validation of a scale involves the collection of empirical evidence concerning its use26. https://doi.org/10.1016/j.fertnstert.2004.07.973. A correlation of endometriosis with placenta previa (odds ratio from 1.67 to 15.1 according to various studies) has been demonstrated, possibly linked to the abnormal frequency and amplitude of uterine contractions observed in women affected. (2022) Impact of Long-Term Dienogest Therapy on Quality of Life in Asian Women with Endometriosis: The Prospective Non-Interventional Study ENVISIOeN. endstream endobj 235 0 obj <>/Subtype/Form/Type/XObject>>stream Epub 2021 Dec 27. H237402VH2P0P4&F Deal LS, Williams VS, DiBenedetti DB, Fehnel SE. The impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. PubMed official website and that any information you provide is encrypted 2011;8(2):497503. Impairment Questionnaire to assess professional life in endometriosis patients [ 11 ]. f H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  f Each item contributes equally and higher scores indicate a greater impact. ResourceRef The common identifier for all versions and renditions of a document. Endometriosis is a chronic disease as symptoms may continue despite seemingly adequate treatment [30]. Endometriosis is a heterogeneous, chronic disease with a systemic impact, with three clinical phenotypes: superficial peritoneal endometriosis (SPE), ovarian endometrioma (OMA), and deep infiltrating endometriosis (DIE). f 0 0 9.949 9.425 re http://springernature.com/ns/xmpExtensions/2.0/editorInfo/ endstream endobj 250 0 obj <>/Subtype/Form/Type/XObject>>stream stFnt internal H4 0'l K] See this image and copyright information in PMC. E\i\\ Focus on questionnaire methods, selection and use of content experts for instrument development. E\i\\ `asp8WT(\\H!CT $ The study used a methodological design which involved the development and evaluation of data collection instruments, scales or techniques [18]. E\\y\FzFfP\.s=3sS#&U) The final 63-item EIQ contained six dimensions including: 33-item physical-psychosocial; 3-item fertility; 7-item sexual; 11-item employment; 6-item educational; and 3-item lifestyle. You may also want to give the gynaecologist a copy of the completed questionnaire. women in whom endometriosis was excluded. endstream endobj 216 0 obj <>/Subtype/Form/Type/XObject>>stream However, very little is known about the relationship between endometriosis-related symptoms and sex. f The https:// ensures that you are connecting to the But once diagnosed, endometriosis is treatable. 2010;8:64. https://doi.org/10.1186/1477-7525-8-64. -, Nnoaham KE, Hummelshoj L, Webster P, D'Hooghe T, de Cicco NF, de Cicco NC, Jenkinson C, Kennedy SH, Zondervan KT. It could be useful to guide development of an individualized disease management plan, and could help patients to communicate with health professionals and contribute to such a plan. E\\y\FzFfFP\.s=3s#(&Q/ E\\y\FzFfP\.s=3sS#&U) pdf (428.88 kB) File info Download file. %PDF-1.4 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. E\\y\FzFfP\.s=3sS#&U) For example, current questionnaires are not able to measure the impacts on a woman who lost her sexual-intimate relationship or who was not able to complete studies and/or work goals, loss of job or promotion opportunities, or addressed her regrets from living with endometriosis. Some experts suggested arranging the items in logical groups rather than having the items all mixed up, to make it easier to complete by responders. endstream endobj 232 0 obj <>/Subtype/Form/Type/XObject>>stream H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  We recommend additional studies to establish validity evidence for the EIQ, including studies in other countries and languages. H*2T0T04&F endstream endobj 241 0 obj <>/Subtype/Form/Type/XObject>>stream E\\y\FzFfP\.s=3sS#&U) application/pdf endstream endobj 207 0 obj <>/Subtype/Form/Type/XObject>>stream High positive correlations between the EIQ and the EHP-5 (altered recall period) indicated good evidence of concurrent validity. Article Obstetrics and Gynecology. endstream endobj 240 0 obj <>/Subtype/Form/Type/XObject>>stream 0 The EIQ-link was widely advertised via flyers disseminated or posted. The score for each dimension at each recall period was the sum of all applicable items divided by the maximum score, rescaled to 0-100. 0.749023 g uuid:34576cf7-e17b-4316-a457-670595fb7ddb endstream endobj 265 0 obj <>/Subtype/Form/Type/XObject>>stream Tripoli TM, Sato H, Sartori MG, de Araujo FF, Girao MJ, Schor E. Evaluation of quality of life and sexual satisfaction in women suffering from chronic pelvic pain with or without endometriosis. CAS As a web-based survey was used, the generalizibility of the results is restricted to those who are keyboard and Internet literate [40]. Qual Life Res. sharing sensitive information, make sure youre on a federal The W ork Productivity and Activity Impairment Questionnaire demonstrated construct validity and repro- 0 0 9.949 9.426 re XMP Paged-Text Existing tools only asses a subset of QOL indicators, and measure disease impact with a perspective of four weeks or less. Qual. H4 0[V`9&q !YfVsu\TDgUfHLO{#vXMw\ja+-  The authors declare that they have no competing interests. endstream endobj 169 0 obj <>/Subtype/Form/Type/XObject>>stream A sample size of 423 was adequate for factor analysis based on a Kaiser-Meyer-Olkin (KMO) test result of more than 0.9 and a Bartletts test of sphericity that was significant (p < 0.01). Introduction. endstream endobj 156 0 obj <>/Subtype/Form/Type/XObject>>stream 0 Because of the chronic and recurring nature, many of the impacts of endometriosis could be missed using, Journal of Obstetrics, Gynecology and Cancer Research. Violeta Lopez endstream endobj 267 0 obj <>/Subtype/Form/Type/XObject>>stream endstream endobj 175 0 obj <>/Subtype/Form/Type/XObject>>stream https://doi.org/10.1002/nur.20147. Jones G, Jenkinson C, Kennedy S. Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5. Several lesion types have been described (1,6): Conclusions: H*2T0T04&F CK#&U) endstream endobj 262 0 obj <>/Subtype/Form/Type/XObject>>stream Part of PDF/A standard High intra-class correlations indicated very good test-retest reliability. endstream endobj 155 0 obj <>/Subtype/Form/Type/XObject>>stream Share with us your feedback or any other comments to improve the EIQ. 0 2008;112(6):1214-1220. Bag SeriesEditorInformation Psychological Methods. 0 4th ed: Allen & Unwin; 2011. PlateNames 2014;14:123. https://doi.org/10.1186/1472-6874-14-123. endstream endobj 229 0 obj <>/Subtype/Form/Type/XObject>>stream Through factor analysis, three items were deleted and 63 items formed the final EIQ (Additional file 1). It could be used with all three recall periods or each period independently, because each has satisfactory validity and reliability. Gives the ORCID of an author. Methods: Women with a diagnosis of endometriosis (n = 2060; mean age = 30 years) completed a questionnaire measuring . endstream endobj 193 0 obj <>/Subtype/Form/Type/XObject>>stream `asp8WT(\\H!CT $ endstream endobj 191 0 obj <>/Subtype/Form/Type/XObject>>stream Psychometric properties of the French version of the Endometriosis Health Profile-30, a health-related quality of life instrument. ReadabilityFormulas.com, free readability tools to check for reading levels, reading assessment and reading grade levels. E\\y\FzFfP\.s=3sS#&U) Moradi, M., Parker, M., Sneddon, A. et al. Reprod Sci 29: 1157-69. Use it to assist in identifying patients/students who may be candidates for additional assessment by a physician who specializes in the treatment of endometriosis. E\\y\FzFfP\.s=3sS#&U) endstream endobj 263 0 obj <>/Subtype/Form/Type/XObject>>stream Grove S, Burns N, Gray J. H237402VH2P0P4&F converted Methods: Three studies were carried out to develop the Endometriosis Health Profile-5. All women lled in a questionnaire addressing previous natural pregnancies. EditorInformation endstream endobj 173 0 obj <>/Subtype/Form/Type/XObject>>stream internal 0.749023 g The most widely used instruments are the generic Health-Related Quality of Life (HRQoL) questionnaire including the Short Form36 version (SF-36) [4, 5], the short version of the World Health Organization QoL (WHOQOL-BREF) [6, 7], and the EuroQol-5D [8]. B 0 0 9.949 9.426 re H*2T0T04&F 0.749023 g 0 0 9.949 9.425 re 2013 Mar;28(3):691-7. doi: 10.1093/humrep/des426. http://orcid.org/0000-0002-9084-8907 editor 1992;5(4):1947. Additional file 1: of The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women s lives. In addition, endometriosis patients and experts were asked to evaluate readability of items [21]. sn H237402VH2P0P4&F E\i\\ internal Amendment of PDF/A standard BMC Women's Health, 2019, doi:10.1186/s12905-019-0762-x Future studies should be conducted to measure the impact of endometriosis on lifestyle, as well as education and work which extend beyond time off and lost productivity addressed in previous studies [5, 8]. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. E\\y\FzFfP\.s=3sS#&U) The Endometriosis Impact Questionnaire (EIQ): A tool to measure the long-term impact of endometriosis on different aspects of women's lives Authors: Maryam Moradi Mashhad University of. https://doi.org/10.1093/humrep/det284. H*2T0T04&Ff The EIQ has been developed and validated to measure the impacts of endometriosis on different aspects of womens lives with a long-term view. 0.749023 g Translation and psychometric evaluation of the simplified Chinese-version Endometriosis Health Profile-30. BJOG. For a resource within an xmpMM:Ingredients list, the ResourceRef uses this type to identify both the portion of the containing document that refers to the resource, and the portion of the referenced resource that is referenced. Similar to the EIQ, the ETSQ [12] and the EPBD [13] were developed from focus group discussions and interviews with patients. XMP Media Management Schema dysfunction or loss of libido. Abbott J, Bowyer L, Finn M. Obstetrics & gynaecology: an evidence-based guide. 0 X)A Wyatt JC. (PDF 428 kb) Browse. E\\y\FzFfFP\.s=3s#(&Q/ Culley L, Law C, Hudson N, Denny E, Mitchell H, Baumgarten M, Raine-Fenning N. The social and psychological impact of endometriosis on women's lives: a critical narrative review. 2022 Oct 13;77:100112. doi: 10.1016/j.clinsp.2022.100112. OriginalDocumentID Sepulcri Rde P. doAmaral VF. PDF/A ID Schema COVID-19 pandemic and the consequential effect on patients with endometriosis. `asp8WT(\\H!CT $ endstream endobj 165 0 obj <>/Subtype/Form/Type/XObject>>stream 2019-05-11T13:44:40+08:00 Accessed 21 July 2018. The first page of the EIQ included a brief information form, and it was stated that Completing this questionnaire is voluntary. miRNA-223 expression in patient-derived eutopic and ectopic endometrial stromal cells and its effect on epithelial-to-mesenchymal transition in endometriosis. internal We have now developed and evaluated the psychometric properties of a questionnaire to measure the longer-term impact of endometriosis on different aspects of womens lives. Ballweg ML. 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